Caregiving
Forrest White
Forrest’s mother is a four-time cancer survivor; this experience has allowed him to focus on helping those with cancer and their families get through challenging times by being a role model for caregiving
Caregiving
Caregivers are the backbone of cancer care. They help with appointments, medications, meals, transportation, and emotional support. Whether you’re a spouse, parent, child, or friend, caregiving is a big responsibility—and it can be physically and emotionally exhausting.
Burnout is common, but help is available. Cancer GPS offers resources to support caregivers in caring for their loved ones—and themselves. You don’t have to do it all alone.
FAQ
What do caregivers do?
Caregivers often:
- Give emotional support
- Help with medications and treatments
- Prepare meals and manage nutrition
- Drive to appointments
- Keep track of medical records and doctor visits
- Communicate with the care team. Every caregiver’s role is different, but all are important.
How can I avoid burnout?
Burnout happens when caregivers don’t get enough rest or support. To prevent it:
- Take regular breaks
- Ask family or friends for help
- Use respite care (short-term help from professionals)
- Join a support group to share your feelings You can’t pour from an empty cup—taking care of yourself helps you care for others.
What legal papers should I have?
Important documents include:
- HIPAA release forms (so you can talk to doctors)
- Medical power of attorney (to make decisions if needed)
Advance directives (your loved one’s wishes for care) A social worker or legal advisor can help you prepare these.
How do I balance caregiving with my job?
Talk to your employer about:
- FMLA leave (Family and Medical Leave Act)
- Flexible schedules
- Remote work options You may be able to take time off or adjust your hours without losing your job.
Where can I get emotional support?
You’re not alone. Try:
- Caregiver support groups (in person or online)
- Counseling or therapy
- Hotlines like CancerCare’s support line Talking to others who understand can help you feel less isolated.
Can caregivers get financial help?
Yes. Some states offer programs that pay family caregivers. Nonprofits may help with:
- Travel costs
- Lodging
- Food
- Medical supplies Ask a social worker or check with local organizations.
How can I talk with doctors for my loved one?
With permission, you can:
- Join appointments
- Ask questions
- Take notes
- Help explain symptoms or concerns Make sure your loved one signs a HIPAA release so doctors can talk openly with you.
What if my loved one refuses help?
This can be hard. Try to:
- Respect their independence
- Offer gentle support
- Suggest professional help like a nurse or counselor Sometimes people need time to accept help—keep showing love and patience.
How do I prepare for emergencies?
Create a folder with:
- A list of medications
- Emergency contacts
- Medical history
- Insurance information Keep it in a place that’s easy to grab if you need to go to the hospital quickly.
How do I care for myself?
Self-care isn’t selfish. Try to:
- Eat healthy meals
- Get enough sleep
- Exercise, even if it’s just a walk
- Take time for hobbies or quiet moments You deserve care too—your health matters.
How AskBernie Helps
Caregivers need support just as much as patients. AskBernie can:
- Share tips for managing stress and avoiding burnout
- Help you prepare questions for doctors and organize medical info
- Suggest legal documents and explain what they mean
- Connect you with financial and emotional support resources
- Offer self-care strategies and reminders to take care of yourself
AskBernie is your caregiving companion—helping you feel informed, supported, and never alone.
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